Personal Assistants in the Promotion of Independent Living for Persons with Intellectual Disability: A Basic Applied Investigation

• RUIZ AMBIT, Sandra ^[1] ; RODRÍGUEZ HERRERO, Pablo ^[1] ; IZUZQUIZA GASSET, Dolores ^[1]
  1. [1] Universidad Autónoma de Madrid

     Universidad Autónoma de Madrid

     Madrid, España

     
• Localización: Siglo Cero: Revista Española sobre Discapacidad Intelectual, ISSN 2530-0350, Vol. 50, Nº 2, 2019, págs. 19-38
• Idioma: inglés
• DOI: 10.14201/scero20195021938
• Títulos paralelos:
  • Asistencia personal en la promoción de vida independiente para personas con discapacidad intelectual: una investigación básica y aplicada
• Enlaces
  • Texto completo
• Dialnet Métricas: 4 Citas
• Resumen
  • español

    Planteamiento del problema: El asistente personal es una figura de apoyo a la mejora de la autonomía y la vida independiente, coherente con los nuevos modelos de intervención con personas con discapacidad intelectual. Método: Se desarrollan dos subestudios. El primero cuantitativo, con 120 personas con discapacidad intelectual y 147 familiares, tiene el objetivo de conocer la percepción de las necesidades de apoyo para la vida independiente. La segunda fase es un estudio de casos con 4 participantes, en los que se aplica la figura del asistente personal. Resultados: Destaca del primer subestudio la clara disposición de las personas con discapacidad intelectual a tener más autonomía y autodeterminación en sus proyectos de vida. En el segundo subestudio resalta el impacto de la asistencia personal en el empoderamiento y en la mejora de la autonomía. Conclusiones: Con base en los resultados, se propone un perfil competencial del asistente personal con diez competencias clave y se realiza un análisis crítico de los hallazgos más relevantes.

  • English

    Background: The personal assistant is a support figure aimed at improving the autonomy and independence of persons with intellectual disability, and is coherent with the new models of intervention with such groups. Method: Two sub-studies were conducted. The first one, comprising 120 persons with intellectual disability and 147 relatives, was aimed at identifying perceptions on support needs for independent living. The second was a case study with 4 participants who received support from personal assistants. Results: In the first sub-study, persons with intellectual disability showed a clear preference for a greater degree of autonomy and self-determination in their life projects. The second one highlights the effect of personal assistance on the individuals’ empowerment and the improvement of their autonomy. Discussion: The results are used to suggest a competency profile of the personal assistant, including ten key competencies, and a critical analysis of the most relevant findings is made.

• Referencias bibliográficas
  • Ahlstrom, G. and Wadensten, B. (2011). Family members' experiences of personal assistance given to a relative with disabilities. Health...
  • American Association on Intellectual and Developmental Disabilities (2010). Intellectual disability: Definition, classification, and systems...
  • American Psychological Association (2003). Ethical principles of psychologist and code of conduct. Washington: apa.
  • Arnau, S. (2002). Una construcción social de la discapacidad: El movimiento de vida independiente. Jornades de Foment de la Investigación....
  • Bexkens, A. (2013). Risk-taking in adolescents with mild-to-borderline intellectual disability and/or behavior disorder: An experimental study...
  • Claes, C., Van Hove, G., Vandevelde, S., Van Loon, J. and Schalock, R. (2012). The influence of supports strategies, environmental factors,...
  • Dollar, C., Fredrick, L., Alberto, P. and Luke, J. (2012). Using simultaneous prompting to teach independent living and leisure skills to...
  • Egard, H. (2011). Personlig Assistans i Praktiken. Beredskap, Initiativ och Vanskaplighet. Doctoral Thesis. Lunds universitet, Lund.
  • European Network on Independent Living (2013). Personal Assistance. Brussels: European Union.
  • Farmer, J. L., Allsopp, D. and Ferron, J. (2015). Impact of the personal strengths program on self-determination levels of college students...
  • Fitzgerald, J. (2010). Independent living in the community: are people with intellectual disabilities reaching their full potential? Critical...
  • Freyhoff, G., Hess, G., Kerr, L., Menzel, E., Tronbacke, B. and Van der Veken, K. (1998). Make it Simple: European Guidelines for the Production...
  • Ghaleb, A. (2015). Teaching reading for students with intellectual disabilities: a systematic review. International Education Studies, 8 (9),...
  • Henderson, N. (2009). Empowering students for life. Excepcional parent, 39 (9), 36-37.
  • Izuzquiza, D. and Rodríguez Herrero, P. (2016). Evaluación de la metodología empleo con apoyo (eca) en el Programa Promentor. El ajuste competencial....
  • Jones, J. and Gallus, K. (2016). Understanding deinstitutionalization: what families value and desire in the transition to community living....
  • Karin, A. (2015). The role of the external personal assistants for children with profound intellectual and multiple disabilities working in...
  • McKenzie, J. A. (2013). Models of intellectual disability: towards a perspective of (poss) ability. Journal of Intellectual Disability Research,...
  • McMillan, J. and Schumacher, S. (2010). Research in education: Evidence-based inquiry. Harlow: Pearson.
  • Navallas, E. and Verdugo, M. Á. (2009). Integrando calidad de vida y calidad de gestión en un servicio de viviendas y residencia para personas...
  • O'Brien, P., McConkey and García Iriarte, E. (2014). Co-researching with people who have intellectual disabilities: insights from a national...
  • Officer, A. and Shakespeare, T. (2013). The world report on disability and people with intellectual disabilities. Journal of Policy and Practice...
  • Oxford, M. and McDonald, G. (1999). Two paths-One journey: Ending oppression… one accessible step at a time. Topeka: Kansas Department of...
  • Roos, J. M. (2009). Quality of Personal Assistance Shaped by Governments, Markets and Cooperations. Doctoral Thesis. University of Gothenburg,...
  • Salmon, N., García Iriarte, E. and Burns, E. Q. (2017). Research active programs: a pilot inclusive research curriculum in higher education....
  • Sastre-Riba, S., Fonseca-Pedrero, E. and Poch-Olivé, M. L. (2015). Early development of executive functions: a differential study. Anales...
  • Schalock, R. and Verdugo, M. Á. (2013). The transformation of disabilities organizations. Intellectual and Developmental Disabilities, 51...
  • Schalock, R., Verdugo, M. Á. and Gómez, L. (2011). Evidence-based practices in the field of intellectual and developmental disabilities: an...
  • Schelly, D. (2008). Problems associated with choice and quality of life for an individual with intellectual disability: a personal assistant's...
  • Shogren, L. and Broussard, R. (2011). Exploring perceptions of self-determination of individuals with intellectual disability. Intellectual...
  • Shogren, L., Wehmeyer, M., Palmer, S., Rifenbark, G., Little, T. and Todd, D. (2015). Relationships between self-determination and post school...
  • Soenen, S.; Van Berckealer-Onnes, I. and Scholte, E. (2016). A comparison of support for two groups of young adults with mild intellectual...
  • Stake, R. E. (2005). Qualitative case studies. In N. K. Denzin and Y. S. Lincoln (Eds.), The sage handbook of qualitative research (pp. 443-466)....
  • Verdugo, M. Á., Navas, P., Gómez, L. and Schalock, R. (2012). The concept of quality of life and its role in enhancing human rights in the...
  • Wang, M., Schalock, R., Verdugo, M. Á. and Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life...
  • White, G. W., Simpson, J. L., Gonda, C., Ravesloot, C. and Coble, Z. (2010). Moving from independence to interdependence: A conceptual model...
  • Williams, V., Ponting, L., Ford, K. and Rudge, P. (2009). Skills for support: personal assistants and people with learning disabilities. British...