“Eso te machaca, pero lo necesitas para acceder a los beneficios”:: a espada de doble filo del diagnóstico de enfermedad mental

• Liana Cristina Dalla Vecchia Pereira ^[1] ; Morten Skovdal ^[2]
  1. [1] Universidade Federal de Santa Catarina

     Universidade Federal de Santa Catarina

     Brasil

     
  2. [2] University of Copenhagen

     University of Copenhagen

     Dinamarca

     
• Localización: Ciencias Psicológicas, ISSN 1688-4094, ISSN-e 1688-4221, Año 16, Nº. 1, 2022, págs. 1-15
• Idioma: español
• DOI: 10.22235/cp.v16i1.2220
• Títulos paralelos:
  • “Isso te esmaga, mas você precisa para acessar aos benefícios”:: a faca de dois gumes do diagnóstico de doença mental
  • “It pulls you down, but you need it to access the benefits”:: the double-edged sword of mental illness diagnosis
• Enlaces
  • Texto completo (pdf)
• Resumen
  • español

    Los problemas de salud mental son comunes en todos los rincones del mundo. El diagnóstico de enfermedad mental simultáneamente nombra el problema y etiqueta a una persona. Desde la perspectiva de las representaciones sociales, este estudio fenomenológico explora cómo 12 personas que viven con un trastorno mental en Barcelona, España, experimentaron su diagnóstico. Ellos tuvieron que lidiar con lo que significaba el “diagnóstico para toda la vida”en el sentido de identidad. Los encuentros mediados por estereotipos y cambios en las relaciones sociales reforzaron la experiencia de ser “estigmatizados de por vida” y vistos como “enfermos mentales todo el tiempo”. Sin embargo, los participantes también perciben que el diagnóstico les ayudó a comprender el pasadoy futuro, incluyendo el acceso a beneficios específicos que contribuyó a su recuperación y a sobrevivir económicamente, destacando la ambivalencia del diagnóstico de enfermedad mental. Esteestudio destaca la necesidad de considerar el contexto social y las experiencias de los pacientes.Palabras clave:salud mental; enfermedades mentales; diagnóstico psicológico; diagnóstico psiquiátrico; representación social; estigmatización; España

  • English

    Mental ill-health is rife in all corners of the world. Mental illness diagnosis simultaneously names the problem and labels a person. Taking a social representations perspective, this phenomenological study explores how 12 people living with a mental disorder in Barcelona, Spain, experienced their diagnosis. They experienced having to process what this “diagnosis for life”meant for their sense of self. Immediate encounters of stereotyping and changes in their social relations, reinforced their experience of being “stigmatized for life” and seen as “mentally ill all the time”. Participants did however also note that the diagnosis helped them make sense of the past and the future, including enabling access to specific benefits, which supported their recovery and helped them make ends meet –highlighting the ambivalence of mental illness diagnosis. Thisstudy highlights the need to consider the social context and patients’ narrated experiences of diagnosis centre stage.Keywords: mental health; mental diseases; psychological diagnosis; psychiatric diagnosis; social representation; stigmatization; Spain

  • português

    Os problemas de saúde mental são comuns em todos os cantos do mundo. O diagnóstico dedoença mental simultaneamente nomeia o problema e rotula uma pessoa. Na perspectiva das representações sociais, este estudo fenomenológico explora como 12 pessoas que vivem com um transtorno mental em Barcelona, Espanha, experienciaram seu diagnóstico. Eles tiveram que lidar com oque o “diagnóstico para a vida”significava no senso de identidade. Os encontros mediados por estereótipos e mudanças nas relações sociais reforçaram a experiência de serem “estigmatizados para a vida”e vistos como “doentes mentais o tempo todo”. Contudo, os participantes também percebem que o diagnóstico os ajudou a entender o passado e o futuro, incluindo o acesso a benefícios específicos que contribuiu na sua recuperação e para sobreviver economicamente -destacando a ambivalência do diagnóstico de doença mental. Este estudo destaca a necessidade de considerar o contexto social e as experiências dos pacientes.Palavras-chave:saúde mental; doenças mentais; diagnóstico psicológico; diagnóstico psiquiátrico; representação social; estigmatização; Espanha

• Referencias bibliográficas
  • Aspers, P. (2004). Empirical Phenomenology: an approach for qualitative research. Papers in Social Research Methods Qualitative Series, 9,...
  • Ayestarán, S. & Páez, D. (1986). Representación social de la enfermedad mental. Revista de La Asociación Española de Neuropsiquiatría,...
  • Barbosa, D. J., Tosoli, A. M. G., Oliveira Fleury, M. L., Dib, R. V., Oliveira Fleury, L. F., & Silva, A. N. (2018). Social Representations...
  • Bueno Abad, J. R. & Mestre Luján, F. J. (2005). Prensa y representaciones sociales de la enfermedad mental Press and asocial representations...
  • Cabruja, T. (1988). La imagen popular de la locura. In T. Ibáñez (Ed.), Ideologías de la vida cotidiana (pp. 183-204). Sendai Ediciones.
  • Castillejos Anguiano, M. C., Bordallo Aragón, A., Aguilera Fernández, D., & Moreno Küstner, B. (2019). Perceptions about mental illness...
  • Choudhry, F. R., Mani, V., Ming, L. C., & Khan, T. M. (2016). Beliefs and perception about mental health issues: a meta-synthesis. Neuropsychiatric...
  • Conner, K. O., Lee, B., Mayers, V., Robinson, D., Charles, F., Reynolds, I., Albert, S., & Brown, C. (2011). Attitudes and beliefs abour...
  • Corrigan, P. W. (2007). How Clinical Diagnosis Might Exacerbate the Stigma of Mental Illness. Social Work, 52(1), 31-39. https://doi.org/10.1093/sw/52.1.31
  • Corrigan, P. W. & Watson, A. C. (2002). The Paradox of Self‐Stigma and Mental Illness. Clinical Psychology Science and Practice, 9(1),...
  • Corrigan, P. W., Druss, B. G., & Perlick, D. A. (2014). The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health...
  • Dixit, S. (2005). Meaning and Explanations of Mental Illness: A Social Representations Approach. Psychology & Developing Societies, 17(1),...
  • Epstein, R. M. (2006). Making communication research matter: What do patients notice, what do patients want, and what do patients need? Patient...
  • Evans-Lacko, S., Brohan, E., Mojtabai, R., & Thornicroft, G. (2012). Association between public views of mental illness and self-stigma...
  • Flick, U. (2009). An Introduction to Qualitative Research. Sage Publications.
  • Foster, J. L. H. (2001). Unification and differentiation: a study of the social representations of mental illness. Papers on Social Representations,...
  • Groenewald, T. (2004). A Phenomenological Research Design Illustrated. International Journal of Qualitative Methods, 3(1), 42-55. https://doi.org/10.1177/160940690400300104
  • Howarth, C., Foster, J., & Dorrer, N. (2004). Exploring the Potential of the Theory of Social Representations in Health Research and Vice...
  • Jansen, J. E., Wøldike, P. M., Haahr, U. H., & Simonsen, E. (2015). Service user perspectives on the experience of illness and pathway...
  • Jodelet, D. (1991). Madness and Social Representation: Living with the Mad in One French Community. University of California Press.
  • Min, J. W. (2019). The Influence of Stigma and Views on Mental Health Treatment Effectiveness on Service Use by Age and Ethnicity: Evidence...
  • Mjøsunda, N. H., Erikssonb, M., Norheima, I., Keyesc, C. L. M., Espnesd, G. A., & Vinjee, H. F. (2015). International Journal of Mental...
  • Mojtabai, R. (2010). Mental illness stigma and willingness to seek mental health care in the European Union. Social Psychiatry and Psychiatric...
  • Morant, N. (1995). What is Mental Illness? Social Representations of Mental Illness among British and French Mental Health Professionals....
  • Moscovici, S. (1973). Health and illness. A social psychological analysis. In C. Herzlich (Ed.), Health and illness. A social psychological...
  • Ong, W. J., Shahwan, S., Goh, C. M. J., Tan, G. T. H., Chong, S. A., & Subramaniam, M. (2020). Daily Encounters of Mental Illness Stigma...
  • Pitt, L., Kilbride, M., Welford, M., Nothard, S., & Morrison, A. P. (2009). Impact of a diagnosis of psychosis: user-led qualitative study....
  • Pope, C., Ziebland, S., & Mays, N. (2000). Qualitative research in health care: analysing qualitative data. BMJ - Clinical Research, 320(7227),...
  • Ritsher, J. B. & Phelan, J. C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research,...
  • Rodríguez, F. (2004). La representación social de la enfermedad y de la institución psiquiátrica en el paciente mental. Cuaderno Venezolano...
  • Rose, D. & Graham, T. (2010). Service user perspectives on the impact of a mental illness diagnosis. Epidemiology and Psychiatric Sciences,...
  • Rössler, W. (2013). What is normal? The impact of psychiatric classification on mental health practice and research. Frontiers in Public Health,...
  • Schomerus, G. & Angermeyer, M. C. (2008). Stigma and its impact on help-seeking for mental disorders: What do we know? Epidemiologia e...
  • Tassone-Monchicourt, C., Daumerie, N., Caria, A., Benradia, I., & Roelandt, J. (2010). Etats dangereux et troubles psychiques : images...
  • World Health Organization [WHO]. (2010). mhGAP Intervention Guide: for mental, neurological and substance use disorders in non-specialized...
  • World Health Organization [WHO]. (2013). Mental Health Action Plan 2013-2020. http://apps.who.int/iris/bitstream/10665/89966/1/9789241506021_eng.pdf?ua=1
  • Ye, J., Chen, T. F., Paul, D., McCahon, R., Shankar, S., Rosen, A., & O’Reilly, C. L. (2016). Stigma and discrimination experienced by...