Discapacidad adquirida y discapacidad sobrevenida: análisis comparativo de la sobrecarga que generan ambas formas de discapacidad en las madres de hijos afectados

• Autores: Raquel Suriá Martínez
• Localización: Siglo Cero: Revista Española sobre Discapacidad Intelectual, ISSN 2530-0350, Vol. 42, Nº 239, 2011, págs. 67-84
• Idioma: español
• Enlaces
  • Texto completo
• Dialnet Métricas: 4 Citas
• Resumen

  • En los últimos años, el interés por llevar a acabo programas de apoyo para los cuidadores de personas con discapacidad ha incrementado notablemente. Generalmente, las principales protagonistas de esta labor son las madres de hijos con discapacidad.

    El estudio examina la influencia de las variables sociodemográficas en la salud y sobrecarga que puede suponer un hijo con discapacidad. Asimismo, se compara el impacto que tiene en las madres cuidadoras de hijos con discapacidad la etapa en la que se adquiera ésta.

    Participaron 32 madres de hijos con discapacidad, de ellas, 16 eran madres de hijos con discapacidad adquirida al nacer y las otras 16 eran madres de hijos con discapacidad sobrevenida tras un accidente de tráfico. Se utilizó la versión adaptada al español de la escala de sobrecarga de Zarit.

    Los resultados indicaron un nivel de estrés o sobrecarga mayor en las madres de hijos con discapacidad sobrevenida causada por la lesión medular tras el accidente.

    Estos resultados sugieren que los estilos de vida anteriormente existentes en las madres que se enfrentan a la discapacidad sobrevenido de un hijo pueden dificultar el afrontamiento a la nueva forma de vida y ello, dificulte la adaptación a esta situación traumática.

• Referencias bibliográficas
  • Azar, M. y Kurdahi, L. (2006). The adaptation of mother of children with intellectual disability in Lebanon. Journal of Transcultural Nursing,...
  • Belinchón, M. y cols. (2001). Situación y necesidades de las personas con trastornos del espectro autista en la Comunidad de Madrid. Madrid:...
  • Blacher, J. y Baker, B. (2007). Positive impact of intellectual disability on families. American Journal on Mental Retardation, 112, 330-348.
  • Brent, C. y Matthew, L. (2006). SocialEmotion Development of Infants and Young Children with orofacial Clefts. Infants and Young Children,...
  • Bristol, M. (1987). Mothers of children with autism and communication disorders: successful adaptation and the double ABCX model. Journal...
  • Brobst, J. B., Clopton, J. R. y Hendrick, S. S. (2009). Parenting Children With Autism Spectrum Disorders: The Couple’s Relationship. Focus...
  • Bromley J., Hare D. J., Davison, K. y Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: social support, mental health...
  • Browne, G. y Bramston, P. (1998). Stress and the quality of life in the parents of young people with intellectual disabilities. Journal on Psychatry...
  • Cohen, J. (1992b). Fuzzy Methodology. Psychological Bulletin, 112, 409-410.
  • Conti-Ramsden, G., Botting, N. y Durkin, K. (2008). Parental perspectives during the transition to adulthood of adolescents with a history...
  • Cunningham, C. C. (1987). Early Intervention in Down’s syndrome. En G. Hosking y G. Murphy (Eds.), Prevention of mental handicap: A World...
  • Cuxart, F. (2000). El autismo: aspectos descriptivos y terapéuticos. Málaga: Aljibe.
  • Dabrowska, A. y Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome....
  • Dale, E., Jahoda, A. y Knott, F. (2006). Mothers’ attributions following their child’s diagnosis of autistic spectrum disorder: Exploring...
  • DeMarle, D. y Le Roux, P. (2001). The life cycle and disability: experiences of discontinuity in child and family development. Journal of...
  • Dunn, M. E., Burbine, T., Bowers, C. A. y Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental...
  • Dunst, C. J., Hamby, D., Trivette, C. M., Raab, M. y Bruder, M. B. (2002). Young children’s participation in everyday family and community activity....
  • Eisenhower, A. S., Baker, B. L. y Blacher, J. (2005). Preeschool children with intellectual disability: syndrome specificiy, behavior problems...
  • Farber, B. (1959). Effects of a mentally retarded child on family interaction. Monographs of the Society for Research on Child Development,...
  • Glidden, L. M. y Jobe, B. M. (2007). Measuring parental daily rewards and worries in the transition to adulthood. Am Journal Mental Retard, 112,...
  • Greer, F., Grey, I. y McClean, B. (2006). Coping and positive perceptions in Irish mothers of children with intellectual disabilities. Journal...
  • Hastings, R. y Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with...
  • Hastings, R. y Taunt, H. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation,...
  • Heiman, T. y Berger, O. (2008). Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support....
  • Hill, R. (1949). Families under Stress. New York: Harper & Row
  • Hill, R. (1958). Generic features of families under stress. Social Casework, 49, 139-150.
  • Holroyd, J. y Mcarthur, D. (1976). Mental retardation and stress on the parents: a contrast between Down´s Syndrome and Childhood Autism. American...
  • Jones, J. y Passey, J. (2005). Family Adaptation, Coping and Resources: Parents Of Children With Developmental Disabilities and Behaviour...
  • Konstantareas, M. (1991). Effects of developmental disorder on parents: Theoretical and applied considerations. Psychiatric Clinics of North America,...
  • Kuhn, J. C. y Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal...
  • Limiñana, R. M. y Patró Hernández, R. (2004). Mujer y Salud: Trauma y cronificación en madres de discapacitados. Anales de Psicología, 20,...
  • Little, L. y Clark, R. R. (2006). Wonders and worries of parenting a child with Asperger Syndrome and nonverbal learning disorder. The American Journal...
  • Martín, M., Salvadó, I., Nadal, S., Miji, L. C., Rico, J. M., Lanz, P. y Taussig, M. I. (1996). Adaptación para nuestro medio de una Escala...
  • Martire, L. M., Lustig, A. P., Schulz, R., Miller, G. E. y Helgeson, V. S. (2004). Is it beneficial to involve a family member? A meta-analysis...
  • Minnes, P. y Steiner, K. (2008). Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or...
  • Oizumi, J. (1997). Assessing maternal funtioning in families of children with autism. Dissertation Abstracts International: Section B: The...
  • Olsson, M. (2009). Understanding individual differences in adaptation in parents of children with intellectual disabilities: a risk and resilience perspective....
  • Olsson, M. B. y Hwang, P. C. (2001). Depression in the mothers and fathers of children with intellectually disabilities. Journal of intellectually Disability...
  • Orsmond, G. y Seltzer, M. (2007). Siblings of individual with individual with autism or down syndrome: effect on adult lives. Journal of Intellectual...
  • Ortega, S. P., Salguero, V. A. y Garrido, G. A. (2007). Discapacidad: paternidad y cambios familiares. Avances en Psicología, 25, 110-125.
  • Pakenham, K. I., Samios, C. y Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double...
  • Papalia, D., Wendkos, S. y Duskin, R. (2005). Psicología del desarrollo: De la Infancia a la adolescencia, desarrollo psicosocial en la niñez...
  • Pelchat, D., Lefebvre, H., Proulx, M. y Reidy, M. (2004). Parental Satisfaction with an Early Family Intervention Programme. Journal of Perinatal...
  • Phetrasuwan, S. y Miles, M. S. (2009). Parenting stress in mothers of children with autism spectrum disorders. Journal for Specialists in...
  • Plant, K. M. y Sanders, M. R. (2007). Reducing problem behavior during care-giving in families of preschoolaged children with developmental disabilities....
  • Pozo, P., Sarriá, E. y Méndez, L. (2006). Estrés en madres con trastornos del espectro autista. Psicothema, 18, 342- 347.
  • Price, S., Price, CH. y McKenry, P. (2010). Families & Change. Coping with stressful events and transitions. Sage Publications Inc: USA.
  • Risdal, D. y Singer, G. H. S (2004). Marital adjustment in Parents of children with disabilities: A Historical review and Meta-analysis. Research and...
  • Roll-Pettersson, L. (2001). Parents talk about how it feels to have a child with a cognitive disability. European. Journal of Special Needs...
  • Romero, R. y Morillo, B. (2002). Adaptación cognitiva en madres de niños con sindrome de Down. Anales de Psicología, 18, 169-182.
  • Sanders, J. L. y Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down Syndrome: implication...
  • Samios, C., Pakenham, K. I. y Sofronoff, K. (2008). The nature of sense making in parenting a child with Asperger syndrome. Research in Autism...
  • Scorgie, K. y Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38, 195-206.
  • Stainton, T. y Hilde, B. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual & Developmental...
  • Satir, V. (1988). Relaciones Familiares. México: Editorial Buena Vista.
  • Singer, G. (2006). Metaanalysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal...
  • Singer, G. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities....
  • Singer, G., Ethridge, B. y Sandra, A. (2007). Primary and secondary effects of parenting and stress management interventions for parents of...
  • Synder, H. T., Bilboul, M. A., y Pope, A. W. (2004). Psychosocial Adjustment in Adolescents With Craniofacial Anomalies: A Comparison of Parent and...
  • Tallman, I. (1965). Spousal Role Differentiation and Socialization of Severely Retarded Children. Journal of Mariage and the Family, 27, 37-42.
  • Vera, J., Morales, D. y Vera, C. (2005). Relación del desarrollo cognitivo con el clima familiar y el estrés de la crianza. Psico-USF, 10,...
  • Tsibidaki, A. y Tsamparli, A. (2007). Child with special needs, family and school: a relation of interaction. Athens: Atrapos.
  • Weisz, V. y Tomkins, A. J. (1996). The right to a family environment for children with disabilities. American Psychologist, 51, 1239-1245.
  • Weigl, V., Rudolph, M., Eysholdt, U. y Rosanowski, F. (2005). Anxiety, Depression, and Quality of Life in Mothers of Children with Cleft Lip/Palate....
  • Zarit, S. H., Reever, K. E. y BachPeterson, J. (1980). Relatives of impaired elderly: correlates of feelings of burden. Gerontologist, 20, 649-55